Today has been another roller coaster. We started out with the expectation of hearing your getting discharged tomorrow, but that came crashing down rather quickly. Instead, it was the routine of he didn't eat enough overnight and now your discharge is in jeopardy. Then the words we didn't want to hear started getting thrown around again: re-insertion of the NG feeding tube which would prolong the stay another 3-5 days.
If you think you just got frustrated reading that, imagine how we felt. The hopes of finally being out of the hospital potentially dashed over two consecutive shortfall feedings in which the total deficit was overcome by the rest of the feedings during the 24 hr period. Even removing the emotion from the situation and looking at it from a data driven (engineering) perspective would show you there are trends to his eating that were being ignored by only focusing on the two nighttime feedings.
In short, Mommy wasn't happy and neither was Daddy. Fortunately, we had a discussion with the doctor and he hadn't ruled out the discharge on Tuesday, but said any backsliding would mean retention. We are also frustrated because this jeopardizes two things the start of the ICPC proceedings which don't start until discharge and the court appearance on Wednesday to begin adoption finalization proceedings.
Our day did have a few good moments including a trip to the local Boutiquey place called Gardner Village for a little shopping. Followed by dinner at Tapanyaki Japanese Steakhouse, which is like a Shogun for those of you back home, with our friends and NICU cohorts Dan and Anna whose daughter Daneah shares the room with Mason. Excellent choice and just a good chance to maintain our bond and sanity while not listening to alarms, bells, and cries.
Through the 11:30 PM feeding, he met the goal in each feeding. Mason continued gaining weight and was up to 5 lbs 6 oz, yet another criteria for release.
He's a little bulldog and a battler.
On behalf of Stacey and Mason, I continue to ask for your prayers. Please prayer for Mason's health and eating and that we can keep our emotions and frustrations in check.
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